Rarrrgggghhhh is what I want to write about my thoughts on hypoglycaemia and hyperglycaemia but if I did that for the whole of this post some would invariably contact social services in fear that I’m not capable of looking after my children. Well, funny you should think that (what? you didn’t think it, oh must be just me then).
This weekend I nearly forced my daughter into a diabetic coma, then we had the rebound effect, then we had arguments this morning when Beth didn’t get up for school on time and then we had the heart breaking moment when, as I watched Bethany put her clothes on wrong, I realised that I’d done it again, ignored the signs and she was hypo. Un-Fit-Mum Alert!
and THEN there’s the ripple effect on the whole family…
Keeping up? I’d forgive you for needing to read that opening a few times to make sure you’d read properly. I’ll set the scene shall I? Bethany woke up on Sunday morning quite late but not late enough for me to creep upstairs to make sure she was still breathing and hadn’t died in her sleep (I have done that on many occasions). I was feeding the dogs and Beth came stumbling into the back room with eyes as wide as saucers ‘what’s going on?’ she asked. I laughed and said ‘It’s Sunday Beth, don’t worry you’re not late for school’. I just assumed she’d woken up in a hurry and was a bit discombobulated.
Then it registered that Beth had slurred her words. ‘What are your bloods Beth?’ She didn’t know, I ran upstairs to get her kit, I knew, she was hypoglycemic i.e. having a hypo. I came down tested her and …. 27.5mmol WHAT! she was the complete opposite according to her machine and now I was worried she was being affected by ketones and not low blood sugars. We tested her ketones and she was 0.3 hmm I thought, possibly just starvation ketones but to be on the safe side I decided to give her 10u of insulin using her pen to get her blood sugars down quickly, who knows how long they’d been this high?
I set to work on making Beth some breakfast whilst she lay on the sofa. Ten minutes later I went into the living room and tested her again to see if the insulin had started to take effect. 1.7mmol WHAT!
I’d f**ked up. We’d not cleaned her hands, I’d tested a dirty finger the first time, I’d just given Bethany 10u and she was already having a hypo before I’d administered it. I had completely ignored my motherly instincts, I must never, NEVER ignore my instincts.
I called my husband in from the garden and Lewis came trotting behind him, Lewis has sensed the urgency in my voice and look concerned. We sat in the living room with Beth for an hour giving her dextrose and sugar water to get her bloods back up and drag Beth back from her hypoglycaemia. I sat there with the glucagon pen in my lap toying with the idea of using it or not. How incoherent and sleepy should I let her get before I did it, or should I let her slip into unconsciousness first then administer it. My mind was racing and all I could do while we waited was stroke her back and watch her breathing like a hawk.

It was terrifying for me, for Brett for Lewis, even the dogs knew something was up and insisted on laying on Beth’s back and legs. After what seemed a decade, Beth was able to answer my questions and nod her head, still slurred but she was coming back to us. I knew she was back when she said ‘what the hell was is that drink you gave me?’ Ah, thank goodness, the teenagers back in the room.
The rest of the day was the inevitable roller coaster of blood sugars that followed and gladly she seemed fine by the evening and Lewis had forgotten about the days traumatic events. Then there’s the ripple effect.
So today started really well (sarcasm in that there typing I’m afraid). Lewis was in a foul mood and Bethany, well she was almost impossible to wake. Now Beth’s always been my up bright an early child but, these past few weeks she’s been slowing down as her teenage body and brain does it’s thing and needs more sleep. On the third call though I was starting to get annoyed and screamed GET UP!
I went in to find Bethany putting on a pair of shorts over her head, she had one arm out of the leg! ‘What on earth are you doing Bethany’ (she was in trouble, I’d full named her). Beth looked back at me vacant ‘I don’t know’.
Shit! she’d gone low again. As Beth tried to layer up more clothes I got her kit ready to test her. She was 2.8mmol and that was with her dawn phenomenon that should have kicked in around 3-4am. I’d done it again and ignored the signs, or rather mistook them for a typical teenager trying to avoid school. There was no way she was going to school until I was happy with her levels, so I kept her at home for a bit longer than usual and helped her levels up with dextrose and a decent breakfast.
All the time this was going on I’d been emailing both children’s teachers, Bethany’s so that they knew of the weekends events and the fact Beth’s sugars may be a bit rocky and Lewis so that his teachers were prepared for his ripple effect.
He rippled on a grand scale today.
Thank goodness I was blissfully unaware until they found him, yes that’s right, Lewis went missing again! Thankfully he didn’t reach the 20 minute cut off so the police were not called on this occasion. It’s fair to say that Lewis was pretty unsettled today. But his awesome school handled it, dealt with it and told me after the storm so I didn’t have to worry needlessly. I’m so grateful for that because there’s my ripple effect….
…I’m cracking again, it’s times like this when I realise that my wounds are not fully healed and the skin is so paper thin. I walked the dogs, did the shopping (a triumph in itself) attempted a recipe for a review, it failed, I sobbed but only internally, these eyes don’t cry anymore. Then the neighbours all decided to burn rubbish in their gardens and cut paving slabs so as I watched my washing disappear in a smog of smoke and dust I switched my electrical’s off and curled up on the sofa with my dogs.
So to sum up, hypoglycaemia, hyperglycaemia, diabetes as a whole, autism and mental health can all bloody do one.
Tomorrow is another day Rebecca, tomorrow is another day.

disclaimer: with all of my ‘behind the scenes’ posts the same guidelines apply, I am not a trained medical professional, I’m a mum, a bloody tired mum but a damn good one too. All the ideas, thought and opinions in these types of post relating to Type 1 Diabetes and Autism are my own unless I have referenced a professional or piece of evidence to make a point.
If you’ve only just happened across my blog Glutarama, then you may also be interested to know this is not the main topic I write about, the majority of my posts relate to free from recipes and reviews, as our family are affected by Coeliac Disease, egg, dairy other intolerances it keeps me busy in the kitchen, but boy do I have fun experimenting for my family and followers.
Karen says
Oh my I have just read this at it mimics my life with my teenage daughter and how I often feel
Glutarama says
Oh bless you Karen, it can be pretty bloody rubbish can’t it. I keep having to reassure myself that we’re doing the best we can with a condition that doesn’t like to be controlled and makes up its own rules (then changes them back again just to keep you on your toes). Remember that all your support and hard work is sinking in with your daughter and one day, she’ll take the reins because our kids learn by example. Always here for a chat over rmail if you need it [email protected] Rebecca x
Sarah says
I understand how hard that must be, being a parent is challenging and we make mistakes, you are doing a fantastic job it’s super challenging having to care for someone else’s health when the results are so instant. Hang in there, you’ll all figure it out and life doesn’t have to be perfect to be wonderful. Your children remember that you are always there for them, they don’t see your perspective!
Glutarama says
Bless you Sarah, thank you for your comments it means a lot to me x
Sophie Le Brozec says
Bloody hell Rebecca! You are fricking amazing, I honestly have no idea how you deal with any of this, ever. And remember at any stage I am here for you, as is the whole community of Life Reboot Campers. We might not understand exactly what you’re going through but we’re there to listen (read) and support however we can. Big love, Sophie xx
Glutarama says
You don’t have to understand darling, just being there is what matters xxx
MS says
Hey Rebecca – I read this earlier today and wondered how on earth you managed to handle all of this. You’re doing an amazing job, and you’re obviously very capable at looking after your lovely kids x.
Glutarama says
Oh Sadie, thank you so much for your kind comment, I needed that today, perfect timing xxx
Kate - Gluten Free Alchemist says
Sounds like that was one shit weekend. So sorry to hear that things have been that rough for you. You are a fantastic mother for sure…. trust me I’m a S….. …..r. Beth (and Lewis) are lucky to have you. I have no idea how you cope with it all xx
Nat @ intolerant gourmand says
Yikes, that’s a hell of a lot to be dealing with!! Even just one thing would floor most people, so it’s no wonder you’re all feeling the ripple effect!
You mustn’t beat yourself up, these things happen, and you knew exactly what to do to help Beth each time!
You’re an inspiration with everything you deal with, and I know you won’t hear it, but incredibly strong too!
Sending you huge hugs, and fingers crossed for a calmer rest of the week! Xx
Vicki Montague says
Oh Rebecca, I am really sorry to read this. What an awful thing to have to go through. I doubt many of us can understand how dreadful this is. If you want to call please do. I’m always at the end of the phone and as you say, tomorrow is another day and it can only be better right??? And that recipe will be just perfect on another day (but I’m happy to do it if it doesn’t work). xxx
Pauline Spensley says
Oh bless you,you are amazing how you handle it all….. We can only do our best and you seem to be more than doing that!
Love & big hugs Pauline ?